Lorelei

Lorelei was born on 4/18/08. Two days later she was flown to MUSC in Charleston because she was diagnosed with an interrupted aortic arch and a VSD (hole in her heart). She had her surgery on 4/24/08 and we were back at home on 5/3/08. We feel lucky to have the support from all of our friends and family because we drew strength from that.
Our first week at home has been very tiring. I think that I am at that deliriously tired stage but I have been told it gets better. We have had 2 Dr appointments this week and each said she looks great! Her pediatric cardiologist is amazed at how she has progressed. John and I keep saying she is here for a reason. We have also had some spit up incidents and hope that when we go see the pediatrician tomorrow he won't have to put her on medicine for reflux. We are prepared for that though because it is common for babies that have had surgery like this to have reflux.
This week coming up will be eventful for me because John goes back to work so I am on solo duty. We have 2 Dr appointments this week too. Tomorrow the pediatrician and on Friday we go see an audiologist because anyone who goes on the heart-lung bypass machine may have some hearing loss. She has passed 2 hearing tests so far.
Please keep praying for Miss Lorelei as we have to make sure that her aortic valve and the tissue underneath it are growing at the same rate she is growing. Also, please keep her roomies in PCICU at MUSC (Ryan and Montgomery) in your prayers.